I had an appointment with my neurologist this afternoon. The weather was nice enough that I got onion soup at the Panera in the clinic lobby and ate it outdoors before seeing Dr. Sloane.
The doctor did some low-tech neurology, including watching me walk quickly down the hall, having me walk tightrope-style to check my balance, and testing my grip strength by having me squeeze his fingers. The doctor said there was no change in those, but I think my balance was better today than at the last visit. He then sent me downstairs for blood tests: my vitamin D is where we want it (at the top of the "normal" range), and the abnormally low antibody count is what we expect from the Kesimpta.
I asked about reducing the gabapentin dose to 900 mg, since when I went from 1500 mg to 1200 the medication continued to be effective at stopping my legs from twitching at night. (For a while, it was 1500 mg, with the option of taking another 300 mg capsule if necessary. I went to 1200 after a few months of never needing the extra capsule.) The doctor said I could try it, but he would prescribe 1200 mg/day (I think the last refill was for 1500 mg/day.)
I then walked up the hill to Brigham and Women's Hospital to keep
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adrian_turtle company in the epilepsy monitoring unit. We talked some, I made some phone calls on her behalf, and I sat quietly reading next to her bed for a bit.
All in all, I did a lot of walking today, despite taking a Lyft to the neurologist; some of that was because I got turned around a couple of times, including inside the hospital. (I stayed home yesterday because my knee was bothering me, and wasn't sure how much walking I had in me today.)
